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Clark Archibald
John Mcnamara
Kevin Perkins
Melissa Merson
Thomas Martwinski
Jennifer Bornemann
Kathleen Fetissoff
Linda Laird
Chris Ellinghaus
Fabrice Le Det
Petra Le Det
Nick Logan
Ran Korolik
Erik Feeney
Christopher Giordano
Charlie Dunne
Karen O'Riordan
Mia Richter
Jennifer Tebbetts
Debbie Ragals
Brian Breen
Dru Bornhoeft
Cheryl Iseberg
Richard Volpe
Christopher Price
Alexander Ha
Gregory Hoots
Tricia Ryan
Domnick Nelson
David Knight
Caryn Blanke
Douglas Munsee
Alexis Andrianopoulos
Glenn Hines
Philip Clark
Susan Langevin
Karen Duffy
Mike Duffy
Brian Duffy
Kevin Long
Steven Perunovich
Sean Dutra
Michael Ricci
Cathy Ruf
Ed Bullock
Ryan Van Praet
Doreen DiMeglio
Judy Pratt
Michael Keim
Barbara Altemus
April Colescott
Gabe Fiscus
Ken Fanelli
Larry O'Connell
Caryn De Filippo
Jennifer Brady
Diego Avalos
Megan Knepper
Brian Kochanek
Paul Nowicki
Ron Salmon
Barry Conrad
Christopher Demers
Jennie Eddy
Marty Peterson
Jack Keenan
Dennis Joyce
Rob Duguay
John Plumley
Kimberly Magee
Sean Waklee
Christine Suter
Collette Bates
Brad Culp
T. Connelly
Michael Carr
Richard Higgs
Sean McNamara
Jason Biggs
Henry Hoyle
John Purvis
Leah Roberts
Robert Maldonado
Bill Peloso
Shelley Farmer
Michele Solomon
Daniel Molloy

Michael Ireland

Michael Hicks, Jr.

Leanda Cave

Ryan Close

Courtney Greene

Thomas Simmons

Colin Lake

Tim Smit

Jordan Bryden

Kim Williams

Chris Parker

Shawn Mahoney

Lisa Unger

John Ryan

Dana Ryan

Conn Jackson

Michael Mathers

JD Mathers

Nancy Nicklas

John Wolski

Adolfo Roa

Jen McGuiggan

Charlie Komar

Alexander Karn

Tarcisco Alvarez-Rivero

Rodney Ward

Mark Helisek

Paul Mandell

Bob Gebbie

Jerry Sappington

Kimberly Daley

John Daley

Celeste Callahan

Michael Swyt

Kimberly Sass

Jeremiah Crandell

Christie and Mark Di Pietro

Susanna Di Pietro

Paul Fahey

Vernon Johnson

Mary Miller

Cami Stark
John Wright
Chris Tidmore
Anna Jenkins
Chris Stafford
Brian Layman
Todd Verkest
Brent Layman
Sean Chick
Kevin Davidson
Jane Dempsey
Fernando Sumaya



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Tim Smit's War on ALS


Hello Blazeman Warriors,

We have some exciting news to share this month! As many of you know, our mission is both awareness and funding cutting-edge scientific research to find a treatment and eventual cure for ALS. Our warriors have excelled at raising awareness everywhere they go, which in turn has generated the financial support we need for funding a cure. Thanks to everyone's hard work and generous support, we have made our first research grant to The Les Turner ALS Research Laboratory at Northwestern University's Feinberg School of Medicine. The grant, known as the Blazeman Post-Doc in ALS, provides two years of funding in the laboratory of Dr. Teepu Siddique and was awarded to Dr. Kaouther Ajroud, Ph.D. For more information, read the article below. This partnership would not have been possible without you - THANK YOU!!!
On another medical note, we have also made a support grant available for the 4th Annual ALS/MND Nursing Symposium this September in Chicago, IL in conjunction with the Les Turner Foundation and Northwestern University's Feinberg School of Medicine. This grant will allow a nurse to attend who would not otherwise be able to finance the trip.  As Jon's caregiver and a nurse myself, I cannot stress how important this area is overlooked. I will also be in attendance and look forward to sharing our story as well as bringing awareness to our mission.

I am thrilled to share this news with you as we continuously work in support of our mission to raise awareness and resources in support of a cure for ALS. We're one step closer and, for that, I thank you.

Till next time....

With strength, honor and affection,
Mary Ann Blais
Jon's Mom
Blazeman Foundation for ALS

Blazeman Foundation Dedicates First Research Grant to Northwestern University

The Blazeman Foundation Post-Doctoral Fellow in ALS will advance cutting-edge research

With a recent two-year $100,000 commitment to Northwestern University Feinberg School of Medicine, the Blazeman Foundation for ALS has issued their first research grant. In partnership with the Les Turner ALS Foundation, the Seekonk, Massachusetts-based organization will support the research of the Blazeman Foundation Post-Doctoral Fellow in ALS.

Recently designated to fill the fellowship position, Kaouther Ajroud, PhD, will work in the Les Turner ALS Research Laboratory in the Davee Department of Neurology and Clinical Neurosciences under the leadership of Teepu Siddique, MD (photo, right), Les Turner ALS Foundation/Herbert C. Wenske Foundation Professor at the Feinberg School of Medicine. Dr. Ajroud's research will focus on a newly-identified gene associated with ALS, or amyotrophic lateral sclerosis, which is often referred to as "Lou Gehrig's Disease." As the Blazeman Foundation Post-Doctoral Fellow in ALS, she will continue to advance the laboratory's research while benefitting from advanced training in the neuromuscular disorder sub-specialty.

"We think Dr. Ajroud's research will have wide implications for this disease, including sporadic ALS," Dr. Siddique commented. "This gene and new targets identified in our genome-wide study in sporadic ALS lead us closer to pinpointing the causes of ALS, and ultimately, will lead to therapies to limit the effects of ALS."

On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish line in Hawaii in honor of Jon and his battle against ALS. In 2007, the Blazeman Foundation for ALS expanded Team Blazeman, comprised of "Blazeman Warriors" who have committed to raising awareness and funding a search for a cure for ALS..."So  Others May Live."

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