The myth of asexuality? Disability stigma as a barrier to sexual relationships in South Africa Literature review
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- Bu səhifədəki naviqasiya:
- Batty, Richard, McGrath, Laura, and Reavey, Paula. "Embodying limb absence in the negotiation of sexual intimacy." Sexualities, 17, no. 5-6 (2014): 686-706 (paying access)
- Beauregard, Line, and Noreau, Luc. "Spouses of persons with spinal cord injury: Impact and coping." British Journal of Social Work (2009): 1-15 (paying access)
- Braathen, Stine H., and Kvam, Marit H. “‘Can anything good come out of this mouth’ Female experiences of disability in Malawi." Disability Society 23, no. 5 (2008): 461-474 (paying access).
- Cheausuwantavee, Tavee. "Sexual problems and attitudes toward the sexuality of persons with and without disabilities in Thailand." Sexuality and Disability 20, no. 2 (2002): 125-134 (paying access)
- Cheng, Mariah M., and Udry, J. Richard. "Sexual behaviors of physically disabled adolescents in the United States." Journal of Adolescent Health 31, no. 1 (2002): 48-58 (paying access)
- Copel, Linda C. "Partner abuse in physically disabled women: A proposed model for understanding intimate partner violence." Perspectives in Psychiatric Care 42, no. 2 (2006): 114-129 (Paying Access)
- Corker, Mairian. "Isnt that what girls do"-disabled young people construct (homo) sexuality in situated social practice." Educational and Child Psychology 18, no. 1 (2001): 89-107 (open access)
- Crawford, Danette, and Ostrove, Joan M. "Representations of disability and the interpersonal relationships of women with disabilities." Women Therapy 26, no. 3-4 (2003): 179-194 (paying access)
- Deepak, Sunil. "Male, female or disabled: Barriers to expression of sexuality" Masters thesis, (2002): 1-84 (open access)
- Dune, Tinashe M. "Understanding experiences of sexuality with cerebral palsy through sexual script theory." International Journal of Social Science Studies 1, no. 1 (2012): 1-12 (open access)
- Esmail, Shaniff, Darry, Kim, Walter, Ashlea, and Knupp, Heidi. "Attitudes and perceptions towards disability and sexuality." Disability and Rehabilitation 32, no. 14 (2010): 1148-1155 (paying access)
- Guldin, Anne. "Self-claiming sexuality: mobility impaired people and American culture." Sexuality and Disability 18, no. 4 (2000): 233-238 (paying access)
- Helmius, Gisela. "Disability, sexuality and sociosexual relationships in womens everyday life." Scandinavian Journal of Disability Research, 1, no. 1 (1999): 50-63 (paying access)
- Howland, Carol A., and Rintala, Diane H. "Dating behaviors of women with physical disabilities." Sexuality and Disability 19, no. 1 (2001): 41-70 (paying access)
- Hyland, Ann-Marie, and McGrath, Margaret. "Sexuality and occupational therapy in Ireland–a case of ambivalence." Disability and Rehabilitation 35, no. 1 (2013): 73-80 (paying access)
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- Julia, P. E., and Othman, A. S. "Barriers to sexual activity: counselling spinal cord injured women in Malaysia." Spinal Cord 49, no. 7 (2011): 791-794 (open access)
i): World
Addlakhu’s qualitative study of Indian youth with disabilities highlights some key issues (e.g., gender as important to sexual self-perception), in a largely under-researched domain.
Aguilera’s qualitative study of devotees is a rare exploration of those for whom the disabled community are a sexual fetish. In particular, this paper challenges the view that people who are attracted to people with disabilities are “sick” or “bad”.
Akinci’s descriptive study on the comfort levels of Turkish nurses (N = 141) with sexual topics finds that many (> 50%) are uncomfortable carrying out a range of duties (e.g., answering the sexuality questions of male patients).
Akinci et al.’s descriptive study on the comfort levels of Turkish nursing students (N = 161) during sexual counselling finds that less than half address sexual questions from patients comfortably. Akinci’s work (see above) extends knowledge on professional attitudes to disabled sexuality to the Turkish context.
Altuntug et al.’s qualitative exploration of sexual and reproductive health in the Turkish context suggests that many experience sexual dysfunction, stemming from both physical and psychological factors.
Andersson’s bachelor’s thesis sheds light on the sexuality experiences of women with disabilities in an under-researched context (Tanzania). In common with the extant peer-reviewed literature (e.g., Bahner, 2012), she finds that women with disabilities face challenges to sexual expression at an individual and structural level.
Balderston paper provides evidence which demonstrates that attitudes at the societal level legitimize sexual violence against women with disabilities in the UK. The findings further suggest micro-level strategies through which victimised women with disabilities can reconstruct their identities and challenge negative discourses at the societal level.
Bahner’s qualitative exploration highlights the disparity between the stated aims (e.g., autonomy) of a personal assistance programme in Sweden and the lived experiences that persons with disabilities have of their sexuality. Like other extant research in the same context (e.g., Helmius, 1999) Bahner’s work, demonstrates the gap between societal attitudes/aims and the experiences of persons with disabilities.
Batty and colleagues explore the way sexual identities are negotiated and managed among limb amputations. The use of a visual workshop highlights how participatory methodologies can provide a richer and more contextualised understanding of disabled sexuality.
Beauregard and Noreau’s work represents a rare qualitative exploration into how acquired physical disability (SCI) may impact spouses (see also Esmali et al., 2007, 2010).
Beckwith and Yau build on the existing literature by investigating disabled sexuality within an Australia context, identifying a number of individual and structural barriers to sexual expression.
Blackmore et al. show that both positive and negative partner support predicts the sexual satisfaction of persons with disabilities. The authors highlight the relevance of their findings to future intervention studies.
While offering relatively pessimistic descriptive evidence as to the prevalence of dating (< 30%) among a sample of disabled teens (N = 162), this study nevertheless highlights that interest in intimacy is high (75%), thereby refuting myths of asexuality.
Braathen and Kvam’s qualitative exploration of women with disabilities in Malawi, highlights a range of positive and negative experiences, shedding light on a little researched context.
Data collected by Browne and Russell describes how Australian persons with physical disabilities negotiate sexual health issues without crossing client-carer boundaries.
In the Swedish context, Brunnberg et al. find that sexual debut is higher among disabled 15- 16 year olds, compared to non-disabled 15-16 year olds.
The authors validate the scale for body and sexual self-esteem among a sample of Brazilian physically disabled athletes.
This descriptive comparative study suggests that persons with (N = 25) and without disabilities (N = 76) are mostly similar in their sexual attitudes (e.g., kinds of love they want).
Like other comparative studies (e.g., Cheausuwantavee, 2002) Cheng and Udry find similarities between physically disabled and non-disabled adolescents, notably in terms of their sexual experiences.
The findings of Copel’s qualitative study on the experiences of abused women with disabilities were used to develop an alternative theoretical model of the abuse cycle.
Corker uses narrative methods to explore how persons with disabilities identifying as non- heterosexual construct their identity in social and educational settings.
The authors explore intersectionality as a framework for understanding the partner victimisation experiences of non-White persons with disabilities. Their findings are illustrated through two case examples, and (the authors argue) demonstrate the usefulness of intersectionality for understanding abuse.
Cramp et al. build on previous work on the sexuality of persons with SCI (e.g., Julia & Othman, 2011) by focusing specifically on the experiences that women with disabilities have of urinary incontinence and their sexual satisfaction.
Crawford and Ostrove explore how societal attitudes (“representations”) of disability, shape the sexual experiences of women with disabilities, accessed through interviews.
In this Master’s thesis, Deepak identifies barriers to sexuality among an Italian sample of persons with disabilities. In common with the extant peer-reviewed literature (e.g., Helmius, 1999), he finds that persons with disabilities face barriers to sexual expression at the individual and structural level.
Dune’s work (see also below) uses sexual script theory to explore the sexuality experiences of people with cerebral palsy’s through an interactional lens. The findings therefore help clarify how people with cerebral palsy negotiate and communicate about sexual preferences, desires and experiences.
This paper focuses explicitly on how public constructions of disabled sexuality influence the way that sexuality is negotiated among persons with disabilities.
Dyer and das Nair offer a systematic review of healthcare professionals’ experiences of addressing the sexual health issues of service users. Findings offer a more comprehensive understanding of the perceived barriers in this area (e.g., worry about causing offence, personal discomfort), which can be used to guide future interventions.
The authors explore how a sample of Canadian youths with disabilities construct their sexual identities. In addition to addressing a gap in the literature and helping correct systematic misperceptions of disabled sexuality, the findings help legitimize the sexual and emotional needs of a sample of disabled youth.
Esmali’s work (see also Esmali et al. 2010) aims to understand the lived experience of disability (multiple sclerosis; MS) on couples’ sexuality, thus addressing an often neglected perspective in the literature. This paper focuses on experiences when the female partner is diagnosed with MS.
This paper focuses on experiences when the male partner is diagnosed with MS. Esmali’s work (see also Esmali et al. 2007) offers practical guidance for clinicians (e.g., the need to recognise both partners’ intimacy needs).
The authors access societal attitudes toward persons with disabilities by conducting a series of focus groups with different samples (e.g., general public, people with visible disabilities).
Fritz et al. qualitatively explore the sexual and reproductive health experiences of women with spinal cord injuries (N = 20).
This study uses grounded theory to shed light on the processes that form the disabled identity, post-impairment on-set. Galvin finds that disabled sexuality is heavily influenced by the (negative) attitudes of others in society.
Guldin interviewed a number of disabled participants (N = 7) to explore how they claim their sexuality. She found that dominant cultural notions of sexuality and disability were often simultaneously challenged and reinforced by participants.
Harrison et al. investigate the relationship between a number of marital (e.g., status, desire for) variables and self-acceptance of disability among a sample of people with multiple sclerosis. They identified a gender difference: for men, being married was associated with a greater acceptance of disability.
Hasan et al. examine the prevalence, correlates and coping strategies in regard to intimate partner violence toward women with disabilities in Bangladesh (N = 226). Findings shed light on the problem of intimate partner violence toward persons with disabilities in an understudied context.
Using an experimental approach, the authors examine whether target involvement in a sexual relationship moderates attitudes toward people with physical vs. psychiatric disabilities. They found that involvement in a sexual relationship leads to positive attitudes if the person is physically disabled, but negative attitudes if the person has a psychiatric disability (see also Katz et al. 2000).
The authors qualitatively examine the link between low sexual and body esteem and intimate partner abuse in women with physical disabilities. A simple visual model is included for the purposes of aiding reader understanding.
This paper explores sexual experiences of women with disabilities in the context of their daily life. One conclusion drawn is that issues of autonomy, independence and personal assistants in these women's everyday life are brought to a halt when they are related to private sexual life (see also: Bahner, 2012).
Howland and Rintala qualitatively explore dating behaviours among a sample of women with disabilities, a topic they suggest has been neglected by the literature. The authors identify constructs that may be critical to establishing dating behaviours (e.g., familial and peer response to disability; impairment on-set).
The authors interviewed 25 lesbians with physical disabilities about their counseling experiences.
A cross-sectional internet based survey was conducted among a convenience sample (N = 120) of occupational therapists working in Ireland. The authors found that sexuality although considered a legitimate area of practice was rarely addressed by occupational therapists, suggesting that additional training is needed among this group.
Ikumola reports a unique qualitative study, designed to explore how cultural Nigerian (Yoruba) myths influence the sexuality and relationships of persons with albinism. The study concludes that the socio-cultural conception of albinism and albinos as disabled and spiritual beings should be deconstructed to pave the way for effective expression of sexual relationships.
This study compared the sexual desire of Colombian individuals with spinal cord injuries (N = 40) to a non-disabled control group (N = 42) and examined the relationship between health related quality of life and sexual desire in each group. Like other studies conducted in different contexts (e.g., Cheng & Udry, 2002) the findings show that sexuality is just as important for persons with disabilities as it is for the non- disabled.
Data collected by Jemtå et al. describes experiences of intimacy, sexual activity, and abuse among children and adolescents with mobility impairments. The authors call for specialized sexual health care services to protect the sexual rights of this group.
The authors investigate barriers to sexual activity among women with spinal cord injuries within an under-researched setting (Malaysia).
The authors test simultaneously a number of established predictors (e.g., knowledge, education) of rehabilitation professionals’ willingness to discuss sexual issues with clients.
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